Life with Lupus

Life with lupus 🦋

I was diagnosed with Lupus in 2019🕊️ and I’ve been healing ever since.

At my lowest, I couldn’t even open a water bottle, put toothpaste on my toothbrush, or stand long in the shower. On my worst days, I could barely walk and my husband had to carry me out of bed. 💔 I was turning 25 at the time, but I felt like I was turning 85.

I truly wondered, “What kind of life is this going to be?”

But I heard God collects every tear, and I’ve held onto that promise ever since. 💧🙏 “For when I am weak, than I am strong.” 2 Corinthians 12:10

Looking at photos from when I was at my worst still brings up a lot of pain. It’s hard to relive this chapter of my life, but I don’t wanna hide my hurt anymore. Deep down, I believe this is part of my purpose. I’m sharing my story in hopes that it reaches someone—anyone—who needs to know healing is possible.

If you knew me during this time, you probably had no idea what I was going through—unless I trusted you enough to show you my scars or tell you my real struggles. A lot of times “I didn’t look sick”, that’s what makes this an invisible disease because most of the battle is within – although I had a ton of warning signs on my skin that doctors missed, which is why I am sharing on my social media as a way to raise awareness. 

It took me over 3 months to get an accurate diagnosis—and I know for most it can take years. Lupus is widely misunderstood, often mimicking other diseases. I was gaslit by doctors, sent away with no answers, and often misdiagnosed. I am stronger because of every single struggle I’ve faced, and I will continue to shine despite my circumstances. 🌟💪

💜 My lupus showed up as:
• Extreme fatigue and weakness
• Photosensitivity
• Debilitating joint pain
• Red, tender spots on my hands and feet
• Mouth ulcers
• Hair loss
• Painful rashes on my back, shoulders, and chest
• Unexplained fevers
• Cysts
• Sharp chest and abdominal pain
• Nausea and loss of appetite
• Headaches and anxiety
...and more.

Healing has been a journey, and it’s one I’m still on. If you’re battling lupus—or anything else that feels bigger than you—I see you, I feel your pain, and I’m here to tell you: you are stronger than you think. 💜

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